The Neutropenia Support Association Inc. is a volunteer driven registered charity, that was formed in 1989 to increase awareness and understanding of neutropenia by providing assistance to neutropenia patients and their families, and raise money for research and eductation.

2018 Marrow Failure and Myelodysplasia Patient and Family Conference

Toronto SickKids Hospital..

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National Neutropenia Network - 2018 Family Conference Ann Arbor Michigan.

The Neutropenia Family Conference is a time for people and families of all ages and all types of Neutropenia to come to share stories, learn, and spend time together.

Friday, July 13th - Sunday, July 15th, 2018

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About Neutropenia

Neutropenia is a blood disorder you don't often hear about, but it can affect anyone. Some people are born with it. It can happen after a viral infection, or can be drug induced. Some offending agents include some antibiotics, antithyroid agents, tranquilizers, anti-inflammatory agents, antirheumatics, sedatives etc. Exposure to certain poisons can also cause Neutropenia.

Neutropenia affects as many as one in three patients receiving chemotherapy for cancer. It is also associated with many other diseases like Lupus (SLE), Malaria, Hepatitis viruses, Barth Syndrome, Rheumatoid Arthritis, Sjogren's Syndrome, Shwachman-Diamond Syndrome, Aplastic Anemia and Myelodysplastic Syndromes, Parvovirus, Felty's Syndrome, to name just a few.

Neutropenia can be a serious problem requiring prompt attention. Without proper medical care, patients may find it hard to lead normal lives. Severe cases can be life threatening.

Other rare diseases like Shwachman-Diamond Syndrome, Fanconi Anemia, and Kostmann's Syndrome (a congenital neutropenia) can evolve to leukemia and require a bone marrow transplant. The development of treatments and the study of other diseases like AML leukemia, have led to involvement with many organizations which share similar issues.

What we do

The Neutropenia Support Assoc. is a passionate advocate for patients with chronic illness with regard to access issues, patient's needs, patient's protection, and patient's rights. The association has many articles on neutropenia and it's treatment. We maintain an information library to answer questions from patients, their families, and the medical community. We also raise seed money for research.

Some of the groups we are voluntarily working with right now are the Technical Committee on Blood and Blood Components CSA. Other areas of interest are drug strategies and guidelines, drug approval, long term drug safety surveillance, bone marrow transplantation and genetics studies.

Real Life Stories

Letter from Brian Gamley

It has been more than 20 years since I last wrote about my Neutropenia, and what a ride it has been. Since then things have changed dramatically, some of it was not great, some not bad, and other times OK...

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Make a Donation

The Neutropenia Support Association Inc. is a non-profit charitable organization. Your donation will support research and education about this disease.

Charitable Registration #: 0848093-11

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