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Support Association Inc.

Increasing the understanding of Neutropenia by providing information and support for caregivers, patients and their families.

SickKids MFM Family & Patient Conference April 2021

 

The Neutropenia Support Association would like to announce the Toronto SickKids Hospital MFM Family & Patient Conference April 17, 2021.

 

Due to Covid-19 this will be a “Virtual” Patient and Family Conference interactive meeting.

 

It is an ideal opportunity to learn, network with other families and meet experts in the field.

 

This meeting is for patients and families with bone marrow failure disorders and myelodysplastic syndrome, physicians, other health-care workers, fellows, residents and all others who are interested in the field. Children and Adult patients are invited.

 

The conference is FREE! You can attend and watch the sessions from home.

 

Children are welcome!

 

When:  Saturday April 17, 2021 - 8:45 a.m. to 5:00 p.m.

Conference agenda:

Overview and new developments related to the conditions and their treatments; transition of paediatric patients to care in adult centres; information about Canadiantreatment centres and support groups; raising awareness; new research to understand the diseases and develop new treatments in Canada and abroad.

 

For details and to register at no charge please visit Their website:

https://cvent.me/gReNWN

Virtual attendance through webcasting will be provided.

Early registration is recommended!

MFM 2021 Conference Flyer / Brochure

MFM 2021 Conference Agenda

 

 

 

Corona virus

Corona virus disease 2019 (COVID-19) is a respiratory illness that can spread from person to person. The virus is thought to spread mainly between people who are in close contact with one another (within about 6 feet) through respiratory droplets produced when an infected person coughs or sneezes.

The Corona virus, or COVID-19, has been detected in all countries.  Reported illnesses have ranged from mild,to severe, and even death.  The numbers of those who will test positive for the virus will increase but keep in mind that most of the affected will have mild symptoms.

 

For those with Neutropenia, we think it is best that all follow the CDC guidelines as amplified or tailored locally. These steps include:

 

----  Individuals who are on G-CSF should be sure to be vigilant, maintain dosing and not miss doses.

 ----  For those not on G-CSF, when illness occurs, the clinic or ER providing services should be advised that the patient has neutropenia and get a CBC.

 ----  If neutrophil counts are substantially lower than usual, as occurs with some viral infections, i.e., less than 1000, we recommend G-CSF for at least a few days; work with your physician.

 ----  Regarding travel, as far as we know, there is risk is being in crowds with some with respiratory illness, even in the beginning stages. So, airplanes, large social gatherings, etc. are risky and in general should be avoided. 

 

The standard precautions should be done by everyone, including those with Neutropenia

 

---- Wash your hands often.

 ---- If soap and water are not readily available, use a hand sanitizer that contains at least 60% alcohol. Cover all surfaces of your hands and rub them together until they feel dry.

 ---- Avoid touching your eyes, nose, and mouth with unwashed hands.

 ---- Avoid close contact with people who are sick

 ---- Put distance between yourself and other people if COVID-19 is spreading in your community.

 ---- Cover your mouth and nose with a tissue when you cough or sneeze or use the inside of your elbow.

 ---- Throw used tissues in the trash.

 ---- Wear a face mask if you are sick: You should wear a face mask when you are around other people (e.g., sharing a room or vehicle) and before you enter a healthcare provider’s office. If you are not able to wear a face mask (for example, because it causes trouble breathing), then you should do your best to cover your coughs and sneezes, and people who are caring for you should wear a face mask if they enter your room.

 ---- If you are NOT sick: You do not need to wear a face mask unless you are caring for someone who is sick (and they are not able to wear a face mask). Face masks may be in short supply and they should be saved for caregivers.

 ---- Clean and disinfect frequently touched surfaces daily. This includes tables, doorknobs, light switches, counter tops, handles, desks, phones, keyboards, toilets, faucets, and sinks.

 ---- If surfaces are dirty, clean them: Use detergent or soap and water prior to disinfection.

 ---- If you do get sick, seek treatment.

 

While the immediate risk of COVID-19 is  still low at this time, there is still a much more immediate threat of influenza. It's currently flu and respiratory disease season and CDC recommends getting a flu vaccine and taking everyday preventive actions to help stop the spread of germs. If you have not received your yearly flu shot, it’s not too late to get one.

 

This is an emerging, rapidly evolving situation and CDC will continue to provide updated information as it becomes available. For additional and updated information, visit CDC’s Coronavirus 2019 website pages.

 

Stay well.

 

*This information was written and organized by the National Neutropenia Network and the Neutropenia experts with the SCNIR for those who subscribe to the National Neutropenia Network's newsletter. This information is not intended to serve as medical advice. Please see your physician or seek medical treatment is you are ill.